Skip to main content

Life After Major Spine Surgery





     July 2021 I underwent seven hours of spinal cord surgery to remove a tumor that decided to plant itself in my spinal cord. 96% of it was removed, the other 4% had to stay because it would have paralyzed me if they tried to remove it. I could live with 96% of it gone. 

    My spinal cord has straightened out since the majority of the removal. I am beyond grateful for this. Since my surgery my body has fought hard and my mental well-being has had its ups and downs. I was diagnosed with Fibromyalgia in July 2022. It was explained to me that sometimes this condition can be diagnosed after having trauma to your body. The traditional 18 tender points examination, I failed 16 of them. My rheumatologist tested me for every autoimmune disease under the sun to rule out other issues. I was so relieved when everything was coming back negative, however I was beyond baffled as to why I was having painful days (nothing to do with my spine surgery) and chronic fatigue. My rheumatologist was patient and reassuring that what I was feeling was real and actually explained to me that the medicine that is out there for fibromyalgia has a success rate of only 25%.  I flat out denied any medication. I said what is the point in putting synthetic pills into my already tired body for basically nothing? He gave me great reading material, suggested light exercises such as Tai Chi and rest when my body tells me to rest.    

    Right after this diagnosis I was scheduled for another MRI of my complete spine. More great news (insert sarcasm here) Bulging discs from C3-5. Herniated discs from C5-C7. The surgical site looks ok, still CSF present, herniated disc T10-T11 and L1-S1 filled with arthritis, slipped disc L4-L5 and facet arthropathy from L1-L5. Wow, that was a lot to take in! Sometimes I don't know whether I am coming or going! 

    Throughout all of this I have continued to do my research on natural remedies and how to help with my pain and discomfort. The mental stress this can cause a person is so hard to describe because everyone handles their situation differently. For me, setting a routine was so important. I have researched different vitamins and minerals that have proven relief. I cut out processed foods and refined sugars. This was not easy but once I got to week two, the cravings stopped and I was starting to feel better. 

    Little steps I kept telling myself. A little step forward is better than a step back. I started to keep a journal of foods that would trigger my pain and disrupt my sleep. In the beginning it was so hard to determine whether it was the food, or the activities I tried to do during the day that was triggering my symptoms. A lot of trial and error to say the least, but writing down my daily activities and food log helped me to cross my t's and dot my I's. 

    What am I getting at? There is HOPE! While I agree western medicine has its benefits sometimes you need to think outside the box. When you start to look at fruits, vegetables and herbs as medicine it changes everything including your mental health. I want to get my story out there and answer any questions you may have about post surgical care. I feel there is not enough education given to patients after surgery to help them adjust mentally to all that will change. Of course some people are lucky to have family and friends they can vent to, but unless they have gone through something similar they truly do not understand and though you are grateful for them it can be frustrating. 

     

Comments

Popular posts from this blog

Palmitoylethanolamide (Pea) for Pain and Inflammation

This is the one I purchased from Amazon People afflicted with fibromyalgia, low back pain, Osteoarthritis and other conditions may find relief by taking Palmitoylethanolamide (PEA). As a proponent of experimentation in pain management approaches, I initiated an investigation into the effects of PEA to see if it can assist pain control. Doctor Forrest Tennant, an expert in this field who has developed a self-help protocol for Adhesive Arachnoiditis (AA), suggested the use of PEA. After extensive research, I found evidence indicating that PEA may be effective as part of a broader pain management strategy. I decided to give it a try considering there have been no major reported side effects besides nausea. Today is day one. I have decided to start with a low dose 300mg in the morning and 300 mg at night.  Check out this great article from iherb.com I have included some of the article below. It was truly a great read.  PEA Positive Clinical Benefits in Conditions Associated with P...

Holistic Life Coach and My Mission to Help Others

I'm a holistic life coach and my mission is to help people who are struggling with post surgical pain. Dealing with pain can be incredibly tough, both physically and emotionally, and it's something that no one should have to go through alone. That's where I come in. I am a spinal cord tumor survivor and understand the recovery of major life changing surgery all too well! It's so frustrating when you feel like no one is listening to you or believing what you're saying. It can make you want to scream! It's like your voice doesn't matter at all. And even worse, it feels like people think you're lying or making things up. That kind of disbelief can be really hurtful and make you doubt yourself. All you want is to be heard and have your words taken seriously. That is how I felt when I was recovering and no one wanted to help me with post-surgical pain. In my State of New Jersey, unless you have cancer or are on hospice, you will only get five days of pain med...

When My Doctors Would Not Help With My Pain

       After my major spine surgery I was sent home with 20 percocet. I was instructed to take one pill every six hours for pain. If you calculate the instructions that would be five days of pain medicine. I had a tumor removed from my spinal cord, 4 lamina removed from my thoracic spine with no hardware replacing it. My Serratus posterior superior muscles was cut through (upper back major muscle) and four nerve roots were also cut through in order to get to the tumor. To this day I still have CSF leak in my spinal cord as well. While in the hospital ( two days in ICU and 5 days afterwards) I was given dilaudid for the pain. When I am discharged 5 day supply of percocet and then I was on my own.     I called my neurosurgeon's office asking for help. I was told to take 1000 mg of acetaminophen  every six hours, 800 mg of ibuprofen every four hours, valium for muscle spasms three times a day, and the ever so wonderful gabapentin three times a day for ner...